Comments for FightALD! Blog http://fightald.org/blog ALD AWARENESS ACROSS AMERICA Fri, 29 Apr 2011 14:07:38 -0400 hourly 1 http://wordpress.org/?v=3.1.3 Comment on JUST LIKE RIDING A BIKE! LOL. by Arattara http://fightald.org/blog/?p=332&cpage=1#comment-263 Arattara Fri, 29 Apr 2011 14:07:38 +0000 http://fightald.org/blog/?p=332#comment-263 Hope the weather there is ok, it just seems to be one storm after another in that part of the country! Be safe and come home if you feel threatened! Hope the weather there is ok, it just seems to be one storm after another in that part of the country! Be safe and come home if you feel threatened!

]]> Comment on JUST LIKE RIDING A BIKE! LOL. by Janis http://fightald.org/blog/?p=332&cpage=1#comment-262 Janis Thu, 21 Apr 2011 23:32:47 +0000 http://fightald.org/blog/?p=332#comment-262 I knew you'd figure it out. Haha I knew you’d figure it out. Haha

]]> Comment on JUST LIKE RIDING A BIKE! LOL. by Arattara http://fightald.org/blog/?p=332&cpage=1#comment-261 Arattara Thu, 21 Apr 2011 14:10:43 +0000 http://fightald.org/blog/?p=332#comment-261 I think I am finally on board with the whole blog thing! It was a but of a bit of a process to get signed up but I did it! I think I am finally on board with the whole blog thing! It was a but of a bit of a process to get signed up but I did it!

]]> Comment on RAMBLE, PART II by Tweets that mention RAMBLE, PART II « FightALD! Blog -- Topsy.com http://fightald.org/blog/?p=314&cpage=1#comment-252 Tweets that mention RAMBLE, PART II « FightALD! Blog -- Topsy.com Sun, 26 Sep 2010 15:10:09 +0000 http://fightald.org/blog/?p=314#comment-252 [...] This post was mentioned on Twitter by MeredithGould, Kevin O'Toole AC4ALD. Kevin O'Toole AC4ALD said: New blog post from FightALD - take a look http://tinyurl.com/28srftk #sldam #xald [...] [...] This post was mentioned on Twitter by MeredithGould, Kevin O'Toole AC4ALD. Kevin O'Toole AC4ALD said: New blog post from FightALD – take a look http://tinyurl.com/28srftk #sldam #xald [...]

]]> Comment on BACK IN THE SADDLE AGAIN by Janis http://fightald.org/blog/?p=185&cpage=1#comment-199 Janis Wed, 16 Sep 2009 23:44:17 +0000 http://fightald.org/blog/?p=185#comment-199 Here is an awesome e-mail response I got from a woman at one of the medical clinics I stopped at. I met you today in Lees Summit, MO at a doctor's office. Your determination and compassion for your son and your fight for ALD is so admirable. I want you to know I went on your website and read the information and I will be forever touched by your amazing dedication to help others with education about this. I am so sorry for all you have had to go through for your son. I posted your website on my facebook status for all my 400 friends to view. As a mother, I can't even imagine what you have gone through. I am so impressed that you are taking a horrible tragedy and trying to help others cope and get education. You are truly an example of an amazing mother. Thank you for all you have taught me. As I am writing this, I have received messages back on Facebook from all over the country (including New Mexico and Washington DC) stating that your story has touched them as well. I will keep you and your family in my thoughts and prayers. Safe travels around the country. Warm regards, Angie Here is an awesome e-mail response I got from a woman at one of the medical clinics I stopped at.

I met you today in Lees Summit, MO at a doctor’s office.

Your determination and compassion for your son and your fight for ALD is so admirable.

I want you to know I went on your website and read the information and I will be forever touched by your amazing dedication to help others with education about this.

I am so sorry for all you have had to go through for your son. I posted your website on my facebook status for all my 400 friends to view.

As a mother, I can’t even imagine what you have gone through. I am so impressed that you are taking a horrible tragedy and trying to help others cope and get education. You are truly an example of an amazing mother.

Thank you for all you have taught me. As I am writing this, I have received messages back on Facebook from all over the country (including New Mexico and Washington DC) stating that your story has touched them as well.

I will keep you and your family in my thoughts and prayers. Safe travels around the country.

Warm regards,

Angie

]]> Comment on NOW IN MY 18TH STATE! ILLINOIS by Janis http://fightald.org/blog/?p=168&cpage=1#comment-195 Janis Fri, 07 Aug 2009 12:37:18 +0000 http://fightald.org/blog/?p=168#comment-195 Janis, I just wanted to let you know we are still following along avidly. I have tried to comment a number of times to your blog but for some reason I am not able to get logged on to do so. WordPress wants comment leavers to log on to do so, I have a WordPress account but for some reason it is not working for me. I continue to applaud you for your efforts and your time raising awareness the way you are. We are trying desperately to keep up with everyone and everything, most importantly were taking care of ourselves. We are making progress with getting Patrick the help he needs for his complete loss of peripheral vision. Were flying back out to MN on August 30th for his 180 day follow-up, things continue to look good for the most part. We wish you safe travel's on your mission, I loved the recent press right up that I read it was grand. Kevin O'Toole & Family, AC4ALD http://otoole4info.com http://ac4ald.com Janis,

I just wanted to let you know we are still following along avidly. I have tried to comment a number of times to your blog but for some reason I am not able to get logged on to do so. WordPress wants comment leavers to log on to do so, I have a WordPress account but for some reason it is not working for me.

I continue to applaud you for your efforts and your time raising awareness the way you are. We are trying desperately to keep up with everyone and everything, most importantly were taking care of ourselves.

We are making progress with getting Patrick the help he needs for his complete loss of peripheral vision. Were flying back out to MN on August 30th for his 180 day follow-up, things continue to look good for the most part.

We wish you safe travel’s on your mission, I loved the recent press right up that I read it was grand.

Kevin O’Toole & Family, AC4ALD
http://otoole4info.com
http://ac4ald.com

]]> Comment on ROCKIN’ DOWN THE HIGHWAY by Michelle http://fightald.org/blog/?p=142&cpage=1#comment-188 Michelle Sun, 28 Jun 2009 20:37:13 +0000 http://fightald.org/blog/?p=142#comment-188 Hi Janice!!! You truly are an inspiration! :) Hi Janice!!!
You truly are an inspiration!
:)

]]> Comment on ROCKIN’ DOWN THE HIGHWAY by Kevin O'Toole, AC4ALD http://fightald.org/blog/?p=142&cpage=1#comment-183 Kevin O'Toole, AC4ALD Sun, 28 Jun 2009 12:46:22 +0000 http://fightald.org/blog/?p=142#comment-183 Janis, Keep on pressing on! Were behind you all the way. Today marks the first full week that we have been home all together as a family after our 4 month stint in Minneapololis. Still much to be done to get things in smooth running order but I hope to keep up with AC4ALD along the way! Janis,

Keep on pressing on! Were behind you all the way. Today marks the first full week that we have been home all together as a family after our 4 month stint in Minneapololis. Still much to be done to get things in smooth running order but I hope to keep up with AC4ALD along the way!

]]> Comment on QUICK UPDATE by Sarah http://fightald.org/blog/?p=139&cpage=1#comment-165 Sarah Wed, 24 Jun 2009 02:50:58 +0000 http://fightald.org/blog/?p=139#comment-165 Pretty cool post. I just came by your site and wanted to say that I have really liked browsing your blog posts. Anyway I'll be subscribing to your blog and I hope you post again soon! Pretty cool post. I just came by your site and wanted to say
that I have really liked browsing your blog posts. Anyway
I’ll be subscribing to your blog and I hope you post again soon!

]]> Comment on IN THE HEART OF TEXAS by Laura Wagner http://fightald.org/blog/?p=134&cpage=1#comment-146 Laura Wagner Tue, 16 Jun 2009 14:18:00 +0000 http://fightald.org/blog/?p=134#comment-146 Janis, I'm so proud of your fearlessness and commitment to bringing news of ALD to our country. I was amazed by the story of the Texas storms. Thanks for keeping us involved in your journey and we can't wait to see you July 11 at the golf tournament in California. Janis,
I’m so proud of your fearlessness and commitment to bringing news of ALD to our country. I was amazed by the story of the Texas storms. Thanks for keeping us involved in your journey and we can’t wait to see you July 11 at the golf tournament in California.

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